Scientific dissemination of COA results

Scientific dissemination of PRO/COA trial results or the development or evaluation of PRO/COA instruments is of considerable value to establish the credibility of the research.  Such scientific dissemination can take the form of:

  • articles in peer reviewed journals
  • conference abstracts and associated posters or presentations
  • Workshops and webinars.

Adelphi Values teams possess the knowledge and expertise to summarise patient-reported outcome and other COA results and development activities to high academic standards.  We have a track record of successfully publishing the development, evaluation and use of patient-reported outcomes and other COA assessments in both clinical and PRO/COA specialist journals.  We have access to journal and conference selection tools and can advise on publication planning to optimize likelihood of acceptance, speed of publication, exposure to the priority audience and the impact factor of the targeted journal.

Adelphi Values team members have also authored white papers regarding state of the art methods in the PRO field and we frequently present workshops and oral presentations and conferences.  As leaders in the field we consider it our responsibility to summarize PRO/COA research in a manner that is both concise and compelling.

Examples of work disseminated at key conferences in 2018

Loftus J, Pleil A, Lamoureux RE, Turner-Bowker DM, Yaworsky A, Kelly M, Love E, McNamara M, Westhead H, Palladino A.  Burden and impacts of daily recombinant human growth hormone (r-hGH) injections in growth hormone deficient (GHD) paediatric patients. Abstract submitted for presentation at the 57th Annual European Society for Paediatric Endocrinology (ESPE) Meeting, Athens, Greece, September 27-29, 2018.   

Hamed A, Litcher-Kelly L, Yaworsky A, Pabla A, Pollisard L, Munoz-Rojas MV, Ollis S, Kelly M, Shields A. Understanding the experience of MPS I patients to improve outcomes assessments: A literature review. Poster presented at the 15th International Symposium on MPS and Related Diseases, August 2-4, 2018, San Diego, CA USA.

Leteneux-Pantais C, Viriato D, Wolffsohn J S, Kilgariff S, Kommineni J and Tyagi N. Understanding the patient experience of presbyopia via a social media listening study. Poster Presentation at the ISOQOL 25th Annual Conference in Dublin, Ireland, 24-27 October 2018

Sharma G, Viriato D, Naujoks C, Patalano F, Kilgariff S, Wolffsohn JS . Understanding the patient experience of presbyopia and identification of patient-reported outcome assessments: a literature review. Poster Presentation at the ISOQOL 25th Annual Conference in Dublin, Ireland, 24-27 October 2018

Lebwohl M, Simpson E , Bushmakin A , Cappelleri J, Gooderham M , Wollenberg A , Hall R , Gater A , Wells J, Papacharalambous J, Hsu MA , Tallman A , Peeva E, Zhang W, Chen L. Validation of the pruritus and symptoms assessment for atopic dermatitis in adults with moderate to severe atopic dermatitis. Poster presented at 10th Georg Rajka International Symposium on Atopic Dermatitis, Utrecht, Netherlands, April 11 2018.

Mazar I, Power SL, Bruell KA, Litcher-Kelly L. Promoting patient engagement in the development of patient-reported outcome measures for rare diseases. Poster presented at Conference on Clinical Research for Rare Diseases, Rockland MD, USA, 19 November 2018.

Burrows K, Marshall C, Arbuckle R, Turner-Bowker D, Stokes J, Krohe M, Yaworsky A, Mazar I. Best practice methods and considerations for the development, evaluation, and implementation of interviewer-administered patient-reported outcomes (ADPROS). Poster presented at ISPOR EU, 10-14 November 2018, Barcelona

Bennett B, Cooper A Fladrowski C, Evanochko C, Neary MP, Vieira J, Buffa V, Grant L, Tritton T, Kingswood C. Patient and caregiver web-based survey: health utilities in tuberous sclerosis complex (TSC) patient population. Poster presented at ISPOR EU, 10-14 November 2018, Barcelona, Spain

Tritton T, Panter C, Johnson C, Bradley H, Tinsley K, Bennett B. Considerations for using a web-based system to collect patient-reported outcome (PRO) data. Oral presentation at ISPOR EU, 10-14 November 2018, Barcelona, Spain

Scott J, Sully K, Tatlock S, Ireland A, Arbuckle R.  Adapting influenza patient-reported outcomes (PRO) measures to monitor respiratory syncytial virus (RSV) symptom severity in adults: qualitative evidence of key concepts and content validity. Poster presented at ISPOR EU, 10-14 November 2018, Barcelona, Spain

Brahmer J, Schenker M, Lee KH, Provencio M, Nishio M, Lesniewski-Kmak K, Sangha R, Ahmed S, Raimbourg J, Feeney K, Corre R, Franke FA, Richardet E, Penrod JR, Yuan Y, Nathan F, Bhagavatheeswaran P, DeRosa M, Taylor F, Lawrence R, Reck M. CheckMate 227: Patient-Reported Outcomes of First-Line Nivolumab + Ipilimumab in High Tumor Mutational Burden Advanced NSCLC. Oral presentation at the 19th WCLC, Toronto, Canada, September 23-26, 2018

Grant L, Trennery C, Larsen LS, Arbuckle R. Qualitative methods for exploring meaningful change thresholds, including the use of vignettes: value, implementation and learnings. Poster Presentation at the ISOQOL 25th Annual Conference in Dublin, Ireland, 24-27 October 2018


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