Haematology
HaemoPREF: Further evaluation of patient perception and preference for treatment in a real world setting
Bonanad S, Schulz M, Gordo A, Spurden D, Cicchetti M, Cappelleri JC, Tolley C, Staunton H, Brohan E
Haemophilia. 2017; 23: 884-893
Evaluating patient preference for haemophilia A treatment
Schulz M, Gordo A, Tolley C, Staunton H, Brohan E, Spurden D, Cicchetti M, Cappelleri JC
Presented at the 2017 EAHAD Annual Congress, February 1-3 2017, Paris, France
Cognitive testing of an electronic version of the Faces Pain Scale-Revised with pediatric and adolescent sickle cell patients
Gupta N, Naegeli AN, Turner-Bowker DM, Flood EM, Heath LE, Mays SM, Dampier C
Patient. 2016 Mar 30. [Epub ahead of print]
Further validation of the haemopref in a real-world setting
Tolley C, Staunton H, Brohan E, Spurden D, Cicchetti M, Cappelleri JC
Poster presented at International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Vienna, Austria, 29th Oct-2nd Nov 2016
Development and psychometric evaluation of a novel tool for assessing patient perception and preference for haemophilia treatment (HaemoPREF)
Teal S, Brohan E, Hettema Y, Humphrey L, Willgoss T, Hudgens S, Westfeld M, Cappelleri J
Haemophilia, 2014;20:(5):666-673
HaemoPREF: A novel questionnaire for evaluating patient perception and preference for haemophilia A treatment
Teal S, Brohan E, Marshall C, Tolley C, Schulz M, Westfeld M, Cappelleri JC
Poster session presented at: EAHAD 16th Annual European Congress, Brussels, Belgium, 26–28 February 2014
Item refinement and psychometric testing of a novel survey for evaluating patient perception and preference for haemophilia A treatment
Teal SA, Brohan E, Hettema Y, Humphrey L, Willgoss T, Hudgens S, Westfeld M, Cappelleri JC
Poster session presented at: International Society for Pharmacoeconomics and Outcomes Research (ISPOR), 16th Annual European Congress, Dublin, Ireland, 2-6 November 2013
Systematic review of the practice patterns and burden among patients with hemophilia in Japan
Wada K, Crawford B, Lee CW, Krishnan S
Poster session presented at: International Society of Thrombosis and Haemostasis, 14th International Congress, Amsterdam, Netherlands, 29 June-July 4 2013
Haemophilia B: impact on patients and economic burden of disease
Gater A, Thomson TA, Strandberg-Larsen M
Thromb Haemost. 2011 Sep;106(3):398-404. Epub 2011 Aug 11. Review
Hemophilia A: patient impact and economic burden of the disease
Strandberg-Larsen M, Gater A, Thomson A
Value Health 2011;14:A64
An instrument assessing satisfaction with iron chelation therapy: Psychometric testing from an open-label clinical trial
Rofail D, Viala M, Gater A, Abetz-Webb L, Baladi JF, Cappellini MD
Adv Ther. 2010 Aug;27(8):533-46. Epub 2010 Jul 20
Improved patient satisfaction, adherence and health-related quality of life with deferasirox (Exjade®) in β-thalassemia patients previously receiving other iron chelation therapies
Porter JB, Athanasiou-Metaxa M, Bowden DK, Troncy J, Habr D, Domokos G, Roubert B, Rofail D, Gater A, Baladi JF, Cappellini MD
Poster session presented at: 51st Annual Meeting of the American Society for Hematology, New Orleans, USA, 5–8 December 2009
Satisfaction and adherence in patients with iron overload receiving iron chelation therapy as assessed by a newly developed patient instrument
Rofail D, Abetz L, Viala M, Gait C, Baladi J F, Payne K
Value Health 2009;12:109
Satisfaction with iron chelation therapy is associated with improved quality of life in patients with iron overload
Rofail D, Abetz A, Gater A, Baladi JF
Presented at the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), 11th Annual Congress, Athens, 8–11 November 2008