Endocrinology and metabolic disorders

Patient perspectives on the burden of type 2 diabetes mellitus treatment
Yu-Isenberg K, Gray G, Foley C, Stokes J, Shields AL, Dickie G, Lamoureux R, Jackson C, Padilla B, Polonsky W
Poster presented at the American Diabetes Association’s 78th Scientific Sessions, Orlando, FL, USA, June 22-26, 2018.

Exploring the type 2 diabetes mellitus experience from the patient perspective
Yu-Isenberg K, Gray G, Foley C, Stokes J, Shields AL, Dickie G, Lamoureux R, Jackson C, Padilla B, Polonsky W
Poster presented at the American Diabetes Association’s 78th Scientific Sessions, Orlando, FL, USA, June 22-26, 2018.

Psychometric evaluation of questionnaires assessing injection regimen burden in growth hormone deficient (GHD) adults and children treated with growth hormone
Turner-Bowker DM, Yaworsky A, Palladino A, Pleil A, Shields A, Kelly M, Lamoureux RE, Love E, Morrissey L, Loftus J
Poster presented at the International Society for Pharmacoeconomics and Outcomes Research 23rd International Meeting, Baltimore MD, USA 19-23 May 2018.

Insights into the effect of switching to insulin glargine 300 units/ml on HbA1c and daily basal insulin dosage in type 1 diabetes: A treatment-pattern web-based survey in the United Kingdom
Hodgson M, Perry R, Ali A, Price J
Poster presented at the Diabetes UK Professional Conference, London, UK 14-16 March 2018

Understanding the functional impact of movement disorders in glucose transporter type 1 seficiency syndrome (Glut1 DS)
Bowden A, Collins P, Blair S. Wedsock K, Haller M, Brandabur M, Hall R, Kilgariff S, Arbuckle R, Mayhew J, Skrinar A
Abstract submitted to 13th International Congress of Inborn Errors. Rio de Janiero, Brazil, 5-8 September, 2017

The functional impact of movement disorders symptoms in glucose transporter type 1 deficiency syndrome (Glut1 DS)
Bowden A, Kilgariff S, Hall R, Brandabur M, Collins P
Poster presented at: 5th International Symposium on Paediatric Movement Disorders, Barcelon, Spain, 2-3rd February

Development of a paroxysmal movement disorder diary for patients with glucose transporter type 1 deficiency syndrome (Glut1 DS)
Hall R, Kilgariff S, Collins P, Brandabur M, Arbuckle R, Bowden A
21st International Congress of Parkinson’s Disease & Movement Disorder, June 4-8, 2017 in Vancouver, BC

Psychometric validation of a patient-reported outcome questionnaire in patients with pancreatic exocrine insufficiency
Johnson C, Williamson N, Janssen-van Solingen G, Arbuckle R, Johnson C, Simpson S, Staab D, Dominguez-Munoz E, Levy P, Connett G, Lerch M
Poster presented at the 49th Meeting of the European Pancreatic Club (EPC), 28 June 2017

Qualitative assessment of the symptoms and impact of pancreatic exocrine insufficiency (PEI) to inform the development of a patient-reported outcome (PRO) instrument
Johnson C D, Arbuckle R, Bonner N, Connett G, Dominguez-Munoz E, Levy P, Staab D, Williamson N, Lerch M M
Patient. 2017; 10(5): 615–628

Content validity of questionnaires assessing injection regimen burden in growth hormone deficient (GHD) adults and children treated with growth hormone
Turner-Bowker DM, Shields A, Yaworsky A, Lamoureux R, Morrissey L, Kelly M, Love E, Pleil A, Hart G, Hershkovitz O, Loftus J.
Poster session presented at the 22nd Annual International Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Boston, MA USA, 20-24 May 2017

Patient preference for once-weekly dosing in type 2 diabetes mellitus in Japan
Sen R, Shields AL, Atsuda K
Journal of Health Economics and Outcomes Research, 4(1), 55-66

Clinician-reported insights of insulin degludec use in Germany and four supporting European countries
Seitz L, Lopes S, Vandebrouck T, Parekh WA, Canty E, Robinson A, Ohlson L
Poster session presented at: International Society for Pharmacoeconomics and Outcomes Research (ISPOR), 18th Annual European Congress, Milan, Italy, 7-11 November 2015

Development of a patient-reported outcome measure in pancreatic exocrine insufficiency (PEI)
Johnson C, Arbuckle R, Bonner N, Connet G, Dominguez-Munoz E, Haeusler J, Levy P, Platon J, Schifflers M, Staab D, Williamson N, Lerch M
Poster presented at: European Pancreatic Club, Spain, June 2015

Qualitative research to better understand the experience of pancreatic exocrine insufficiency (PEI) symptoms from the patient perspective
Bonner N, Tolley C, Williamson N, Arbuckle R, Platon J, Haeusler J, Schifflers M
Poster presented at European Pancreatic Club, Southampton, June 2014

Perceptions of usability and design for prefilled insulin delivery devices for patients with type 2 diabetes
Heron L, Reaney M, Hermanns N, Abetz L, Gregg L
Diabetes Spectr Winter 2013;26:16

Utilization pattern and healthcare resource evaluation of Japanese insulin initiators during their first year
Ikeda S, Yeung CK, Sato M, Crawford B
Presentation at the 8th Asian Annual Conference on Pharmacoepidemiology, Hong Kong, China, 25 – 27 October 2013

A conceptual model for binge eating disorder based on literature review, expert insights, and patient interviews
Supina D, Shields AL, Stokes J, Taylor F, Pompilus F, Delbecque L, Erder MH
Poster session presented at: Eating Disorders Research Society, 18th Annual Meeting, Porto, Portugal, 20-22 September 2012

Content validity of the PedsQL™ 3.2 diabetes module in newly diagnosed patients with type 1 diabetes mellitus ages 8-45
Varni JW, Curtis BH, Abetz LN, Lasch KE, Piault EC, Zeytoonjian AA
Qual Life Res. 2012; 22(8):2169-81

Development and validation of patient reported endpoints for T2DM
Bron M, Hudgens S, Stokes J, Banderas B, Viswanathan P, Dabbous O
Poster presented at the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), 15th Annual European Congress, Berlin, Germany, 3-7 November 2012

Development and validation of patient-reported endpoints for T2DM
Bron M, Hudgens S, Stokes J, Banderas B, Viswanathan P, Dabbous O
Value Health 2012;15:A503

The effects of household food production strategies on the health and nutrition outcomes of women and young children: a systematic review
Girard AW, Self JL, McAuliffe C, Olude O
Paediatr Perinat Epidemiol 2012;26:205-22

Economic models in type 2 diabetes
Yi Y, Philips Z, Bergman G, Burslem K
Current Medical Research & Opinion 2010; 26 (9): 2105–2118

Psychometric evaluation of the Diabetes Symptom Checklist-Revised (DSC-R) – A measure of symptom distress
Arbuckle RA, Humphrey L, Vardeva K, Arondekar B, Danten-Viala M, Scott JA, Snoek FJ
Value Health 2009;12:1168