Adelphi Values presenting at World Orphan Drug Congress

This week we are attending the 6th Annual World Orphan Drug Congress in Geneva, Switzerland. We are pleased to be presenting a poster entitled ‘Development of patient-centred outcomes in rare diseases’ which will focus on the need for the development of new treatments for rare diseases and indications with orphan designation along with the importance of ensuring that patients are at the heart of drug development programs. We will also outline some of the challenges associated with development of COAs for rare diseases and how patient involvement can overcome these challenges.

Bringing together a full range of stakeholders and influencers in the orphan drug and rare disease sector, the conference’s key aims are strategy, advocacy and partnering for the orphan drug industry and topics will include pricing and reimbursement, commercialisation, collaboration and research on new areas.

If you would like further information on this presentation or on any of our broader patient-centred research solutions, please contact us at